Wednesday, 8 August 2018

Stopping coal expansions in NSW that are bigger than Adani's proposed Carmichael Mine complex


Tuesday, 7 August 2018

Australian Digital Health Agency is considering adding DNA data to My Health Record


Crikey.com.au, 6 April 2018:

DNA DEBATE

The federal government’s controversial My Health Record program is capable of storing genomic data, such as cancer risks, using technology that both has huge research applications and highlights privacy and security concerns.

The Sydney Morning Herald reports that genome-sequencing company Genome.One, which can track genetic variations and therefore disease risks, has built “necessary infrastructure” for uploading sensitive genomic data into the opt-out system.

University of Canberra privacy expert Bruce Arnold has criticised the inherent risks of DNA-tracking technology and, just a week after the government backdown on police access to My Health Records, today’s news as again demonstrating a lack public consultation.

The Australian Digital Health Agency (ADHA) which is responsibe for My Health Record gave Genome.One, a wholly-owned subsidiary of The Garvan Institute, $40,000 in September 2017 to support the development of this software.

Its GoExplore™ software provides sequencing and analyses of patients’ DNA samples to assesses their risk of developing 52 hereditary conditions, including 31 cancers, 13 heart conditions, as well several other conditions where monitoring or intervention can be of benefit. 

In a change of focus, Genome.One and The Garvan Institute are reportedly no longer offering clinical reporting for genetic disease diagnosis or personal health genomics in Australia. This service was priced at $6,400 plus GST, with no Medicare rebate.

Staffing numbers in Genome.One have been severely cut, new capital is being sought and, Gavan has stated that it intends to spin off Genome.One software into a new company in which it will be a minority shareholder.

However, Genome.One still intends to pilot its genomics technology integrated into GP practice software and on !8 April 2018 its CEO stated; “We're working with some electronic medical record providers and we're hoping that we can get a trial underway at some point this year”.

Is Sky News Autralia fast becoming national propaganda central for extreme world views?


This is an excerpt from the book Manufacturing Consent: The Political Economy of the Mass Media (1988) by  Edward S. Herman and Noam Chomsky.


That these observations have a basis in fact can sadly be borne out by mainstream and social media in 2018.

Take this most recent example....



The United Patriots Front (UPF) is a far-right Australian white supremacists group.

In September 2017 admirer of Adolf Hitler, UPF founder & sometime leader Blair Cottrell and two supporters were each convicted under Victoria’s Racial and Religious Tolerance Act 2001 and fined $2,000 plus $79.50 in statutory costs for religious vilification/inciting serious contempt.

This is not the first time Cottrell has been before the courts. In 2013 he was gaoled for a string of offences including stalking, arson, burglary and damaging property.

Despite this dubious history Sky News decided to invite him on as a guest of former Northern Territory Chief Minister & former Country Liberal Party Leader Adam Giles for a one-on-one studio interview on The Adam Giles Show on 5 August 2017.






To describe Cottrell as "an activist" is deliberately misleading as his history is well-known, as are some of his more extreme pronouncements such as this:


The reaction to Sky News was swift and this is just four examples:


Sky News issued an apology:



Then announced a ban on Blair Cottrell and a suspension of the Adam Giles Show, along with an internal  management shakeup, as the general public pushed to the limits continued to fight back against the 'normalising' of violence and racism.

However, as Sky News often employs markedly right-wing personalities and regularly hosts guests with extreme, intolerant and sometimes racist world views, it is not always easy to accept assertions that extremist views are not the news channel's own views. Or at the very least, that these divisive opinions are seen by Sky News management as driving an agenda desired by News Corp and powerful right-wing groups.

In fact Sky News appears to be fast developing into a version of that US right-wing propaganda vehicle, Fox News, in that it seeks to legitimise and monetise for its own corporate profit the most dangerous elements on the far-right political and social spectrum.1


Notes


1. Sky News' liking for yellow press journalism hasn't past unnoticed. 
Junkee, 6 August 2018: Sky News…. was deeply sorry for slut-shaming a (female) federal senator a few weeks ago. In the past, Sky News has been deeply sorry for linking a (female) former state Premier to corruption, deeply sorry for poking fun at a (female) journalist’s disability, and deeply sorry for suggesting a school boy was gay because he’d appeared in a video about feminism.

Monday, 6 August 2018

'Too Dumb To Know That They Are Dumb': an unexpected explanation of why political extremism in Western democracies is as it is.....


A possible explanation for the continuing presence on the Australian political stage of Pauline Hanson, David  Leyonhjelm, Tim Wilson, Darren Hinch, Ian Macdonald, Barnaby Joyce, Michaelia Cash, Tony Abbott, Scott Morrison, Peter Dutton, Christian Porter, Julie Bishop, Josh Frydenberg, Greg Hunt, Alan Tudge and Malcolm Turnbull - Rupert Murdoch suffers from the DunningKruger effect and has infected much of the mainstream media.

Ian G. Anson, Partisanship, Political Knowledge, and the DunningKruger Effect, April 2018:

A widely cited finding in social psychology holds that individuals with low levels of competence will judge themselves to be higher achieving than they really are. In the present study, I examine how the socalled “DunningKruger effect” conditions citizens' perceptions of political knowledgeability. While low performers on a political knowledge task are expected to engage in overconfident selfplacement and selfassessment when reflecting on their performance, I also expect the increased salience of partisan identities to exacerbate this phenomenon due to the effects of directional motivated reasoning. Survey experimental results confirm the DunningKruger effect in the realm of political knowledge. They also show that individuals with moderately low political expertise rate themselves as increasingly politically knowledgeable when partisan identities are made salient. This belowaverage group is also likely to rely on partisan source cues to evaluate the political knowledge of peers. In a concluding section, I comment on the meaning of these findings for contemporary debates about rational ignorance, motivated reasoning, and political polarization.

PsyPost, 16 April 2018:

For his study, Anson examined 2,606 American adults using two online surveys.

He evaluated the knowledge of the participants by quizzing them regarding the number of years served by a senator, the name of the current Secretary of Energy, the party with more conservative positions regarding health care, the political party currently in control of the House of Representatives, and which of four programs the U.S. federal government spends the least on.

Most of the participants performed poorly on the political quiz — and those who performed worse were more likely to overestimate their performance.

“Many Americans appear to be extremely overconfident in their political knowledgeability, because they have no way of knowing how little they actually know about the world of politics (this is the so-called ‘double bind of incompetence’). But there’s a catch: when Republicans and Democrats engage in partisan thought processes, this effect becomes even stronger than before,” Anson explained.

“Partisans with modest factual knowledge about politics become even more convinced that they are savvier than average when they reflect on a world full of members of the opposite party. In fact, when I asked partisans to ‘grade’ political knowledge quizzes filled out by fictional members of the other party, low-skilled respondents gave out scores that reflected party biases much more than actual knowledge.”

“The results seem to indicate the existence of a widespread failure of political discourse in the United States: when a partisan talks to someone of the out-party, they are pretty likely to misjudge the political knowledgeability of themselves and their conversation partner. More often than not, this means that partisans will think of themselves as far more politically knowledgeable than an out-partisan, even when that person is extremely politically knowledgeable,” Anson told PsyPost.

“I think this has major implications for the breakdowns in political discourse we often observe in contemporary American democracy.”

Sunday, 5 August 2018

Tell me again why the Turnbull Government is insisting My Health Record will become mandatory by the end of October 2018?


It is not just ordinary health care consumers who have concerns about the My Health Record database, system design, privacy issues and ethical considerations.

It is not just the Turnbull Government which has not sufficiently prepared public and private health care organisations for the nationwide rollout of mass personal and health information collection - the organisations themselves are not ready.

Lewis Ryan (Academic GP Registrar)
* 91 % of GP Registrars have never used My Health Record in a clinical context

* 65% of GP Registrars have never discussed My Health Record with a patient

* 78%  of GP Registrars have never received training in how to use My Health Record

* 73% of GP Registrars say lack of training is a barrier to using My Health Record

* 71% of  GP Registrars who have used the My Health Record system say that the user interface is a barrier

* Only 21% of  GP Registrars believe privacy is well protected in the My Health Record system

In fact Australia-wide only 6,510 general practice organisations to date have registered to use My Health Record and these would only represent a fraction of the 35,982 GPs practicing across the country in 2016-17.


UPDATE

Healthcare IT News, 3 August 2018:
The Federal Government’s Health Care Homes is forcing patients to have a My Health Record to receive chronic care management through the program, raising ethical questions and concerns about discrimination.
The government’s Health Care Homes trial provides coordinated care for those with chronic and complex diseases through more than 200 GP practices and Aboriginal Community Controlled Health Services nationally, and enrolment in the program requires patients to have a My Health Record or be willing to get one.
But GP and former AMA president Dr Kerryn Phelps claimed the demand for patients to sign up to the national health database to access Health Care Homes support is unethical.
“I have massive ethical concerns about that, particularly given the concerns around privacy and security of My Health Record. It is discriminatory and it should be removed,” Phelps told Healthcare IT News Australia.
Under a two-year trial beginning in late 2017, up to 65,000 people are eligible to become Health Care Homes patients as part of a government-funded initiative to improve care for those with long-term conditions including diabetes, arthritis, and heart and lung diseases.
Patients in the program receive coordinated care from a team including their GP, specialists and allied health professionals and according to the Department of Health: “All Health Care Homes’ patients need to have a My Health Record. If you don’t have a My Health Record, your care team will sign you up.”
Phelps said as such patients who don’t want a My Health Record have been unable to access a health service they would otherwise be entitled to.
“When you speak to doctors who are in involved in the Heath Care Homes trial, their experience is that some patients are refusing to sign up because they don’t want a My Health Record. So it is a discriminatory requirement.”
It has also raised concerns about possible future government efforts to compel Australians to have My Health Records.
“The general feedback I’m getting is that the Health Care Homes trial is very disappointing to say the least but, nonetheless, what this shows is that signing up to My Health Record could just be made a prerequisite to sign up for other things like Centrelink payments or workers compensation.”
Human rights lawyer and Digital Rights Watch board member Lizzie O’Shea claims patients should have a right to choose whether they are signed up to the government’s online medical record without it affecting their healthcare.
“It is deeply concerning to see health services force their patients to use what has clearly been shown to be a flawed and invasive system. My Health Record has had sustained criticism from privacy advocates, academics and health professionals, and questions still remain to be answered on the privacy and security of how individual's data will be stored, accessed and protected,” O’Shea said. [my yellow highlighting]

An ethics question for corporations large and small


Monash University, The Death of Corporate Greed? – Episode 9: A Different Lens